The Silent Crisis: Why Special-Needs Children Need Your Attention Now

Every child is unique, brimming with untapped potential and countless possibilities. Yet for millions of children with special needs, those possibilities often remain locked behind social stigma, inadequate care, and endless roadblocks. 1.2 billion—an immense population whose growth, creativity, and independence remain under-realized due to systemic failures in healthcare, education, and societal support.

Over the past two years, our journey in special needs therapy has been both challenging and profoundly rewarding. Through extensive research, interviews, and firsthand experiences, we at CureAble have uncovered critical insights into the current state of special needs care in India. With our recent successful fundraising, CureAble is poised to make a significant impact, aiming to raise awareness and revolutionize the special-needs therapy landscape across the country and the world. 

In this blog, I’ll share our story, why this problem needs addressing at first priority in child development, what needs to be done to solve this significant problem, and how you can join us in empowering millions of special-needs children globally.

The Hidden Crisis in Special-Needs Care

Alarming Statistics

In India, 1 in 8 children grapples with some kind of neurological condition. Be it mild, moderate or severe. Shockingly, up to 80% of these children do not receive the necessary care. Globally, the numbers are just as staggering, with over 1.2 billion people identified as neurodiverse, including millions of children with autism, ADHD, cerebral palsy, Down syndrome, and other developmental challenges. These statistics highlight a dire need for improved special-needs care systems.

The Broken System – Exploiting emotions for material gain!

Through countless interactions with parents, therapists, and educators, we’ve identified several systemic issues plaguing special-needs care:

  1. Unethical Practices: Many therapy centers prioritize profit over genuine care, charging exorbitant fees for ineffective treatments.
  2. Lack of Personalization: Children often receive generic, one-size-fits-all therapies that fail to address their unique needs.
  3. Inaccessibility: Families waste hours commuting to therapy centers, only to receive brief and inconsistent sessions.
  4. Unqualified Providers: Shockingly, numerous centers employ staff without proper training or credentials.
  5. False Promises: Desperate parents fall victim to “miracle cures” and unrealistic guarantees, wasting precious time and resources.

Several reports indicate that some therapy centers and individuals in India are exploiting parents of children with special needs by offering unqualified services, misdiagnosing conditions, and charging exorbitant fees under false pretenses.

Below are some of the main ways this exploitation takes place, as highlighted by various sources:

  1. Unqualified Professionals and Misdiagnosis
    • In Jammu & Kashmir, parents have reported that many Child Development Centers (CDCs) are run by individuals lacking necessary certifications and training. This leads to misdiagnosis, mistreatment, and serious setbacks for children with conditions like Autism, Cerebral Palsy, or ADHD. Questioning these practices often results in humiliation or exclusion of parents and their children from the centers.1
    • Counselors without clinical psychology qualifications sometimes conduct psychological evaluations, causing incorrect diagnoses and hindering families’ access to essential disability certificates and services.
  2. Fake and Unregistered Centers
    • Authorities in Kochi2 and Hyderabad have taken action (or called for action) against illegal therapy centers operating without registration or proper documentation. These centers often fail to meet the required standards and do not employ properly trained professionals.
    • In Hyderabad, unregistered autism therapy centers have exploited parents’ desperation by promising false or miraculous “cures,” leading to financial and emotional distress.3
  3. Exorbitant Fees and False Promises of ‘Cure’
    • In Delhi, a gang allegedly targeted parents of children with cerebral palsy or autism in malls and hospitals, masquerading as fellow parents. They directed families to a “doctor” who sold random powders and oils with fake “alternative medicine” claims for as high as Rs 5 lakh, offering no real therapeutic benefit.4
    • Families sometimes pay large sums of money to unscrupulous therapists or centers that promise quick improvements or cures, only to find no evidence-based methods or qualified care behind those promises.
  4. Violation of Regulatory Guidelines
    • Under the Rehabilitation Council of India (RCI) and the Rights of Persons with Disabilities (RPWD) Act 2016, only registered professionals are allowed to work with children with special needs. Yet, many centers disregard these rules, continuing to operate without proper oversight.
    • In some states, district authorities have stepped in under Section 133 of the CrPC to regulate or shut down such centers when complaints highlight issues like the absence of credentialed staff and the lack of transparent therapy plans.
  5. Psychological and Emotional Toll on Parents and Children
    • Parents often face stress, guilt, and isolation when therapy outcomes do not match false guarantees of rapid progress.
    • Children, particularly with autism or other developmental disorders, may experience inappropriate interventions or abusive practices, leading to regression or harm rather than improvement.

The consequences are devastating—millions of children are unable to reach their full potential, and families are left feeling hopeless and overwhelmed.

A Personal Wake-Up Call

This crisis became profoundly personal when a relative’s marriage fell apart under the immense stress of raising a child with special needs. Witnessing firsthand the emotional and logistical burdens placed on families, we were compelled to ask: Why should these children and their families suffer? What could be done to change this broken system?

Ways Forward

Providing therapy to children with special needs in India is most effective when it follows a multidisciplinary, individualized, and family-centered approach. Below are some best practices drawn from organizations working in this space:

1. Start with Early Intervention

  • Early Screening and Diagnosis: Early and accurate diagnosis can significantly improve outcomes. As highlighted by Sarthak, early intervention therapies—even during a child’s first 1000 days—can address developmental delays promptly and help manage conditions more effectively.5
  • Evidence-Based Therapies: Multiple sources emphasize that interventions like ABA (Applied Behavior Analysis), occupational therapy, physical therapy, and speech therapy have the strongest evidence of benefit when introduced early and consistently.6

2. Adopt a Multidisciplinary Team Approach

  • Collaboration Among Specialists: Bringing together developmental pediatricians, therapists (speech, occupational, behavioral), psychologists, and special educators under one roof helps ensure coordinated care.
  • Customized Therapy Plans: Each child’s needs are unique, so therapy centers like CureAble’s recommend tailor-made programs integrating more than one form of therapy—such as Brain Gym, listening therapy, and speech therapy—for holistic growth.

3. Emphasize Family Involvement

  • Parent Empowerment: Teaching parents the techniques and exercises to continue at home helps maintain progress. CureAble encourages parents to participate actively in therapy sessions to grasp the strategies and reinforce them at home.
  • Home Programs: Programs like CureAble also offer home programs enabling parents to continue therapy routines, especially useful for those unable to access in-person sessions regularly.

4. Focus on Positive Behavior Management

  • Structured Routines & Visual Supports: Predictable schedules, visual cues, and social stories help reduce anxiety and improve daily functioning.7
  • Positive Reinforcement: Encouraging desired behaviors with immediate praise or small rewards can sustain motivation and skill development. This method features prominently in behavior-focused interventions like ABA therapy.

5. Ensure Qualified Professionals & Safe Environments

  • Verify Credentials: According to the guidelines in an Early Intervention report, parents should ensure that therapists are certified and that the center follows recognized therapy protocols.
  • Regular Monitoring and Reporting: Reputable institutions like CureAble provide continuous assessment and transparent progress reports. Parents can track each milestone and adjust goals as needed.

6. Keep Therapy Child-Centric and Holistic

  • Integrated Therapeutic Methods: Combining speech therapy with occupational therapy or physiotherapy (when indicated) covers multiple developmental domains–motor, communication, cognitive, and social.
  • Sensory Integration & Play-Based Techniques: CureAble incorporate sensory integration activities and play-based approaches to make therapy engaging and child-friendly.

By blending clinical expertise, family participation, and holistic, child-centered routines, therapy centers in India can help children with special needs reach their fullest potential.

Overall, a combination of regulatory oversight, parental vigilance, and professional accountability is essential to curb the ongoing exploitation of special needs families in India.

Here comes CureAble!

After two years of dedicated research, development, and hands-on experience, CureAble has developed a model that is transforming lives across India:

1. Personalized Care

Our RCI-certified educators provide nurturing support, following expert-designed, 12-week personalized plans. This approach ensures that therapy is tailored to each child’s unique needs, fostering growth in a familiar and supportive environment.

2. Holistic Approach

We focus on the entire spectrum of a child’s needs—cognitive, emotional, social, and physical—through a mix of indoor and outdoor activities. This comprehensive approach promotes all-round development, ensuring that children thrive in every aspect of their lives.

3. Transparency and Accountability

With bi-weekly progress reports and regular check-ins, we keep parents fully informed and involved in their child’s development. This transparency builds trust and ensures that therapy is consistently aligned with each child’s evolving needs.

4. Ethical Practices

Our simple, transparent pricing model prioritizes children’s well-being over profits. We believe that every child deserves access to quality care without financial barriers, making our services both affordable and accessible.

5. Empowering Families

We equip parents with the knowledge and tools to support their child’s development, reducing stress and improving outcomes. By empowering families, we create a supportive network that enhances the effectiveness of our therapy programs. With our approach, several families have witnessed significant improvements in their children’s behavior and communication skills within months, defying the long timelines often promised by traditional therapy centers.

Special-needs as a source of inspiration

Notable figures listed here have achieved extraordinary success despite facing special-needs conditions. These individuals span fields like business, science, and arts, demonstrating that neurodiversity can be a source of strength and innovation.

1. Business Leaders

Elon Musk (Autism Spectrum Disorder – Asperger’s)
  • Profile: Founder of SpaceX, Tesla, Neuralink, and The Boring Company, and one of the most influential tech entrepreneurs of our time.
  • Autism Diagnosis: Musk publicly disclosed during his 2021 appearance on Saturday Night Live that he has Asperger’s syndrome, a condition on the autism spectrum.
  • Impact: Musk has attributed his ability to think differently and focus intensely to how his brain works, leading to groundbreaking innovations in renewable energy, space exploration, and artificial intelligence.
  • Quote: “I reinvented electric cars and I’m sending people to Mars in a rocket ship. Did you think I was going to be a chill, normal dude?”
Sir Richard Branson (Dyslexia)
  • Profile: Founder of the Virgin Group, which oversees more than 400 companies globally.
  • Dyslexia Impact: Branson’s dyslexia shaped his ability to simplify complex ideas, turning limitations into strengths that fueled his entrepreneurial vision.
  • Advocacy: Branson celebrates dyslexia as a “different way of thinking,” encouraging others to embrace their uniqueness.

2. Scientists and Innovators

Thomas Edison (ADHD & Hearing Impairment)
  • Profile: Inventor of the phonograph, the electric light bulb, and hundreds of other innovations.
  • Challenges: Edison had significant hearing loss and exhibited traits suggestive of ADHD, such as an inability to focus in traditional educational settings.
  • Impact: He credited his hearing loss with helping him concentrate, ultimately filing more than 1,000 patents in his lifetime.

3. Artists and Creatives

Steven Spielberg (Dyslexia)
  • Profile: Legendary film director behind classics like E.T., Jurassic Park, and Schindler’s List.
  • Dyslexia Impact: Spielberg’s late diagnosis in his 60s revealed the silent struggles he faced growing up. He often felt like an outsider, which he channeled into his storytelling.
  • Quote: “Being dyslexic gave me a greater sense of empathy, and that’s why I tell the stories I tell.”
Ludwig van Beethoven (Deafness)
  • Profile: Renowned German composer whose works, including the Ninth Symphony, are considered the pinnacle of classical music.
  • Deafness Impact: Beethoven began losing his hearing in his 20s but continued to compose some of his greatest works, proving that creativity transcends physical limitations.

4. Activists and Change-Makers

Helen Keller (Deaf-Blindness)
  • Profile: The first deaf-blind person to earn a Bachelor of Arts degree. Advocate for disability rights and acclaimed author.
  • Education and Impact: With the help of teacher Anne Sullivan, Keller learned to communicate, becoming a global symbol of perseverance and inclusion.
  • Quote: “The only thing worse than being blind is having sight but no vision.”

5. Sports Icons

Lionel Messi (Growth Hormone Deficiency)
  • Profile: Argentine soccer legend and one of the greatest footballers of all time.
  • Challenge: Messi was diagnosed with a growth hormone deficiency as a child, which required costly treatment. His perseverance led him to excel in the sport, eventually becoming an icon worldwide.
Michael Phelps (ADHD)
  • Profile: The most decorated Olympian in history, with 28 medals in swimming.
  • ADHD Impact: Phelps channeled his boundless energy into rigorous swim training, turning his condition into a competitive advantage.
  • Advocacy: He now speaks openly about mental health awareness and ADHD.

6. Writers and Thinkers

Leonardo da Vinci (Dyslexia)
  • Profile: Italian polymath and artist behind masterpieces like Mona Lisa and The Last Supper.
  • Speculated Challenges: Scholars suggest da Vinci showed signs of ADHD due to his wide-ranging but often incomplete projects, as well as dyslexia based on his use of mirror writing.

A Celebration of Neurodiversity

These extraordinary individuals remind us that a diagnosis of a special-needs condition is not a limitation—it is often a unique lens through which they see and shape the world. Their accomplishments demonstrate the immense potential within neurodiversity when nurtured with understanding, support, and opportunity.

The stories of Elon Musk, Thomas Edison, and Helen Keller, among others, inspire us to embrace and empower every individual’s distinct abilities. For families raising special-needs children, these examples offer hope—proof that with the right environment, their potential truly knows no bounds.

The Market Opportunity: A Growing Need

The market opportunity for special-needs child care in India and globally is significant and growing, driven by several factors including increasing awareness, rising prevalence of disabilities, and supportive government policies.

Global Market Opportunity

The global special needs center market is experiencing substantial growth:

  • Market size was valued at USD 21 billion in 2020. Expected to grow to USD 67 billion by 2028.

Key drivers of this growth include:

  • Increasing prevalence of various disabilities (autism spectrum disorder, cerebral palsy, Down syndrome, learning disabilities)
  • Rising awareness and acceptance of people with disabilities
  • Supportive government policies and initiatives

Indian Market Opportunity

The Indian market for special-needs child care is also expanding rapidly:

  • The overall child care services market in India is projected to reach USD 25.8 billion by 2030, growing at a CAGR of 5% from 2025 to 20308
  • Home-based care is the largest segment, with a 67.95% revenue share in 2023

Factors contributing to market growth in India:

  • Rising number of nuclear families and working women
  • Increasing disposable income and willingness to invest in children’s education and well-being
  • Rapid urbanization leading to limited support from extended family members for childcare
  • Government initiatives promoting early education

Challenges and Opportunities

Despite the growth potential, there are significant challenges in the special-needs child care sector:

  • Low enrolment numbers of children with special needs (CWSN) in schools
  • Inadequate laws and policies leading to low special educator availability
  • Unhealthy pupil-teacher ratio
  • Lack of appropriate working conditions and training for special educators9

These challenges present amazing opportunities for CureAble to address:

  • Developing specialized centers catering to specific disabilities
  • Investing in training programs for special educators
  • Creating innovative learning technologies for children with special needs
  • Establishing partnerships with government agencies to improve access to special education

Several trends are shaping the special-needs child care market:

  • Integration of technology in monitoring systems and biometric identification for enhanced child safety
  • Rising demand for niche services like special needs child care10
  • Increasing focus on early childhood development and its impact on cognitive and emotional well-being11
  • Growing emphasis on community building and comprehensive product offerings in the childcare sector12

In conclusion, the market opportunity for special-needs child care in India and globally is substantial, driven by increasing awareness, supportive policies, and a growing demand for specialized services. While challenges exist, they also present opportunities for innovation and investment in this crucial sector.

CureAble’s Vision for the Future

Our vision extends beyond India. Within the next 5 years, we aim to impact 100 million special-needs children globally through a combination of home-based care, therapy centers, school-based programs, and technology-driven solutions like VR and app-based therapies. We strongly believe technology will play a huge role in achieving this goal. Here’s how I think technology will shape the future of special-needs child care:

  • Assistive Technologies: Tools like communication aids, mobility support devices, and sensory aids are helping children overcome various challenges.
  • Personalized Learning: Adaptive software and interactive platforms enable customized learning experiences tailored to each child’s unique needs.
  • Engagement and Motivation: Digital tools, including virtual reality environments and educational apps, enhance engagement and motivation for children with special needs.
  • Building communities: Technology can help connect parents of special-needs kids around the world with other parents, therapists, institutions where they can share their experiences, get advice and learn.
  • Accessibility and Inclusion: Technology breaks down barriers to learning through e-books, specialized input devices, and supportive software, promoting inclusion.
  • Professional Development: Online resources and collaboration tools support educators and caregivers in developing expertise and tracking progress.

As technology continues to advance, we can expect even more innovative solutions to emerge, such as AI-powered adaptive learning systems and immersive virtual reality experiences. These developments will further enhance the quality of care and education

Overcoming Challenges: Commitment and Resilience

The journey hasn’t been without its challenges. Hiring skilled therapists and maintaining operational efficiency were significant hurdles initially. However, through persistent efforts and a commitment to excellence, we’ve onboarded over 200 special educators.

Our bootstrapped growth rate of 8-10% month-over-month is a testament to the effectiveness of our model and the trust parents place in us.

A Future Worth Fighting For

We dream of a world where no child is held back from learning, exploring, and thriving simply because they were born with unique challenges. We envision parents who no longer have to choose between false hope and worthless therapies, and children who can grow into independent, fulfilled adults.

At the heart of CureAble lies a simple truth: every special-needs child deserves dignified, well-planned therapy that addresses their complete well-being. Yes, the journey is demanding, but with your support, it’s one we can win. By standing together, pushing for transparency, and delivering personalized care, we can shift an entire ecosystem away from exploitation and toward empowerment.

Join the Movement: Be a Part of the Change

The need for ethical, personalized, and effective special-needs care has never been greater. Here’s how you can support our mission:

  1. Spread Awareness: Share our story and educate others about the challenges faced by special-needs families.
  2. Support Ethical Care: Encourage families to choose transparent and accountable therapy providers.
  3. Advocate for Change: Push for stronger regulations and oversight in the special-needs care industry.
  4. Join CureAble: Whether as a parent, educator, or supporter, become part of our mission to revolutionize special-needs care.

Together, we can ensure that every child with special needs receives the personalized, ethical, and effective care they deserve. Let’s create a world where neurodiversity is celebrated, and every child has the opportunity to thrive.

Conclusion: A Call to Action for Impact

At CureAble, our mission transcends providing therapy; it’s about fostering a supportive community where every special-needs child can achieve their full potential. With your support, we can expand our reach, enhance our services, and touch the lives of millions more children and families.

Will you join us in this crucial mission to transform special-needs care in India and beyond?

Connect with Us

Together, let’s build a future where every child, regardless of their needs, has the opportunity to shine. A world where every child thrives. That’s the CureAble promise.

#SpecialNeedsCare #Neurodiversity #InclusiveEducation #CureAble #TransformingLives

Sources:

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  2. https://timesofindia.indiatimes.com/city/kochi/action-against-illegal-therapy-centres/articleshow/47354738.cms ↩︎
  3. https://www.etvbharat.com/en/!state/illegal-autism-therapy-centers-fake-clinics-flourish-in-hyderabad-exploit-parents-of-affected-kids-enn24122401904 ↩︎
  4. https://timesofindia.indiatimes.com/city/delhi/gang-dupes-150-with-promise-of-cure-with-alternative-med/articleshow/102369147.cms ↩︎
  5. https://sarthakindia.org/reports_web/Sarthak_EarlyIntervention_Final_edit001.pdf ↩︎
  6. https://www.iiahp.com/blog/child-with-special-needs/ ↩︎
  7. https://nupalcdc.com/7-tips-on-effective-strategies-for-behavior-management-in-special-needs-children/ ↩︎
  8. https://www.grandviewresearch.com/horizon/outlook/child-care-services-market/india ↩︎
  9. https://www.pacta.in/Special_Educators_in_India.pdf ↩︎
  10. https://www.globenewswire.com/news-release/2024/10/24/2968423/28124/en/Child-Care-Market-Outlook-Report-2030-Growth-Forecast-Products-Segments-Technology-Trends-Regulatory-Factors-Leading-Companies-Strategic-Opportunities-Regional-Insights.html ↩︎
  11. https://www.globenewswire.com/news-release/2024/12/17/2998435/0/en/Child-Care-Market-Size-Expected-to-Reach-USD-404-46-Bn-by-2034.html ↩︎
  12. https://www.cnbctv18.com/market/the-rising-tide-of-childcare-market-in-india-and-how-ipo-bound-firstcry-wants-to-lead-from-the-front-19415248.html ↩︎

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